Thursday, October 17, 2013
Monday, October 14, 2013
Since the day they found the cancerous mass, August 26, 2011, I have prayed for God to heal my body.
After days of bedridden sickness due to chemotherapy, I was driving to the lake to meet my mother and step father for a boat ride on Lake Cumberland in the glorious October. Hazy and still a little foggy from the chemo, something profound occurred to me (don’t stop reading).
Reeling from the deep depression and anxiety of being as sick as I was, I prayed that daily prayer…. For God to remove all cancer from my body. As a gust of wind blew a bundle of yellow leaves just in front of my vehicle, I wondered briefly, when and how would I know I was healed. When I would know that God had healed me? After more than two years of praying this same prayer, I have come to realize, in order to improve the quality of life, I need to know if God intends to heal me or not.
A solution came to me in a push of great relief woven perfectly with a sense of duty and mission. That great question was entirely up to me.
My whole life, I have expected to be normal. I have expected I would live to be 75 to 85 years old, and that was fine with me. Just like every cancer patient, I have lived the last two years knowing that my lifespan could be and most likely would be greatly diminished. So you and I have been praying for divine intervention – for God to remove the cancer from my body and restore me to my previous sense of mission. Driving, I thought about how I would know I was healed. Would it come with a clean PET Scan? After having several clean scans, I realize a clean PET scan would not be evidence of God’s healing. If there is no diagnostic instrument that can answer the healing question, I guess I would have to wait till I was 75 to 85 years old in order to see if God healed me. But if He did heal me, but I waited the remainder of my natural, cancer free life to know it, or to witness the “proof” of it, what good would the healing be anyway? I would have lived a complete life believing I was still sick and diminished – forty, fifty years of NOT living, but wondering.
It then occurred to me in that emotional push of great relief and a long, firm reach for strength, God would heal me the moment I accepted it. I have already lived longer than the doctors expected. I have no reason to believe this will not continue. In the absence of any medical tool that can proclaim me healed, the only other device would be in taking the journey to the end of my life to know whether healing had occurred. If I continue in the mindset I have been in for the past twenty-six months (wondering if I had been healed or searching for the answer), forty years hence, I would have destroyed any and all healing God had actually done for me, no matter if I lived one more year…. Five more….. ten more…. 50 more years.
The entire question and Idea of healing collapsed right in front of me and I realized that true healing of this cancer means living each and every day that I possibly can, for the soul purpose of living that day. And if I had the strength to do this, then I am healed by God through my faith. The need for “proof” would fasten me to a diminished life of illness of any given length.
So I suppose I will borrow a device from my friends in addiction recovery. I am healed from this cancer if I can live each day as it comes and as long as I keep looking for healing to come, it never will. Rather, if I accept that I am already healed, only then am I truly healed. And I will go forward stitching together the days of my life just like everybody else; with no idea when it will all end.
I suppose it could be argued, the only illness I have is an emotional one wherein, I cease to completely live for fear of dying.
Friday, August 23, 2013
Thursday, August 22, 2013
Two Year Anniversary
This is the anniversary week for the discovery of the cancer in my body. On august 26, 2011 I had a colonoscopy that found the large mass at the very end of my large colon. I remember being miffed about having to do that and miss an afternoon fishing on my beloved creek. I had no idea that anything was seriously wrong with me, so when they woke me up, (the doctors pretty much knew on sight/site what I was in for) I remember feeling, though I never spoke the words, “oh no”. I kept feeling like I needed to push “stop”, then rewind the tape, and start over… it felt as if that should have been an option. In those first few minutes as a cancer patient, the anxiety that sank down through my body from my mind was unspeakable, and it was a perfect blend of pure horror, a desire to do the tests again – just to make sure there wasn’t a mistake – and that I wanted to erase what I had just learned and rewrite a new script. I was in an all-out, all encompassing, grand mal panic episode, and I had no idea how I would ever escape it. So severe was the anxiety, my hands and feet felt hot, even to the touch, and I felt like running – sprinting as far and as fast as I could. The anxiety was as frightening as anything else, and I just wanted it to stop; but in order to get the panic to stop, I had to remove or eliminate its source. How was I to do that?
But to the Glory of God, the panic and debilitating anxiety subsided fairly quickly on its own, just like normal anxiety, the kind that arrives without cause or purpose.
A few days later, after surgery and diagnostics, they gave me the news, stage 4 colon cancer, and I didn’t even know what that meant. The shock and horror of those early days escape me, and lay beyond my ability to convey in words. I thought, my life as I knew it, was over. I was standing on the edge of the most vast, wholesome, necessary learning period of my life and I suppose, in a great many way, I am thankful for it.
I had no idea where the cancer would take me, or how sick I would get (from the cancer or the treatments). I never imagined how difficult it would be. I mean, I really had no idea. The worst part of it all came in the first few months. Doctor after doctor after doctor told me that there was no cure, and that I had probably 2 or 3 years to live. A brand new procedure, HIPEC vastly improved that prognosis, but it tore my body down severely and permanently. Not only that, but the cancer returned (in my lungs) just nine months after the completion of HIPEC, far quicker than the average in the data.
The second year has been somewhat more settled. In this year came general acceptance. I never felt like I only had 2 or 3 years to live. I always thought I’d far outlive that idea, HIPEC or not. I have been able to let go of the things I once loved to do so much, and I have found new, less physically demanding things to do. At this point, it appears as though chemotherapy is going to be a regular part of my life from now on. As times goes on, those treatments make me sicker than they did earlier, and I am worried that the time will come, I will not be able to sustain those treatments.
I have about as many good days as I do bad ones, and I’ve been able to maintain some level of physical fitness (not through cycling – I can no longer sit on that narrow seat due to scars and surgical injuries) through working on my new cabin. I don’t have the stamina that I once had – not even close, but with some wise application of the strength I do have, I can accomplish a great deal I have learned.
Most importantly, the worst symptom of cancer by far, the fear and anxiety have waned to almost non-existent levels compared to the first year, which isn’t to say I am no longer afraid. Some days I am consumed with fear and dread. But it is not constant, as one would think. I have bright and happy times, which I never would have thought.
I suppose the most profound change I have seen in myself, is a general inability to spend any appreciable time with friends or acquaintances. Because of the dramatic treatments aimed at my colon, I am no longer able to function in any reasonable fashion. Many accidents occur, and that is pretty horrible. So I don’t tend to visit or have many visitors. Another reason for the solitude is the fact that even though I have good days, I do have bouts of sickness every day. I never know when these will hit, and the worst thing about these attacks is when I am with others, and I have to cut short the visit, or if I crash and actually need assistance from those I am with. The sickness and the bathroom problems cause needs that just make it vastly easier to stay at home, or near home or alone. You’d think that most people would understand this, but some have and do get their feelings hurt when I don’t accept an invitation to do things.
I have made it two years, as I always knew I would. As for the future, I simply have no idea. Some days it feels like the end is near, and that I won’t make it another year. Other times, I feel like I will make it a great distance into the future, even to a normal longevity (70 or more years in age). When I am in a mood where I believe in the longer time scales, I function daily much better.
I could not function at all without a strong belief in God. The number and ways that many of my prayers have been answered would buoy even the strictest atheist into believing. Praise be to God. Always.
Tuesday, August 6, 2013
August 6, 2003
Wayfaring Stranger. I believe at times, I'm a perpetual wayfaring stranger. a stranger even in my homelands. It's odd, when I look at my family history, legends - At least the family I most identify with, the Indians over the Upper Cumberland watershed. there are times, the deepest since of belonging I've ever known, is upon a gaze of the Big South Fork River - At times I've gained such a powerful since of belonging, in an instant, upon a visit, deep, not focused by myself, tears form in my eyes. And for me, beings like me, the deepest, happiest, strangest tear one can shed, is the one of happiness - happiness in belonging - belonging either to a child, belonging to a lover, or, as in the case of which I now speak, belonging to a land, or a river. There are times when I look down on this River, I am compelled to the greatest since of ease. And it's not something I look for, deep inside. It is not something I assist, or bring upon myself - it is a natural swelling of the land, up to consume me - and I am powerless. And as is the case a great much of the time, such a powerful belonging to one place, one land, one river, often leaves a person feeling like a wayfaring stranger when not in those places.
These eight and a half months - this year, 2003 has been a strange time for me. It has been a time of great self discovery. It has been a time of change. I don't pretend that the times or this phase is over - on the contrary, uncertainty is the only thing that I am certain of these days. I know that I have not kept up with this journal as I have in the past. It is something that wasn't a part of what needed to be done. but I have often thought about it, even had anxiety over it. wondering if I'd ever get back to it. Now that I sit here, and I write for you, I still do not know if it is something that I will maintain regularly - I am still writing the novel that I dream of. Regardless of what remains to be done, or what I will do, I am here, back at Richards Bend for a while at least - and, for the moment, I am compelled to write for you. I am rusty - the gears and processes between my ears are rusty - what I create here, I am not as happy with as I once was. And I think this is for many reasons. The most obvious reason is because I've not done it regularly in so long. Another reason is that maybe I've lost the belief that it is a worthy use of my time. Maybe I no longer believe my words or worth the time spent reading them. Or maybe, as I am led to believe at times, my life here in these woods, in this isolated cabin is more of a liability than an asset, at least in terms of how I am viewed by others. There have been folks think and say some pretty harsh things about my personality when they learn of where I live. What's interesting, there are those too, who say just the opposite - that a life like this one here, would be a marvelous thing. And it seems, nobody is indifferent. I guess I have come to ask myself the ask question that a great many other people are asking for me. and that is, why? Why am I here? I spent a year building the place, the project itself, decent and worthy in anybody's opinion. and then it came time to move in; the spooky nights, the remoteness, some loneliness, the cold, snowy nights and getting iced in for days at a time - no one else here but me - and with the loss of the ability to write, I really did begin to question why I am doing this. Writing a journal, an online journal from such a wholesome, isolated setting was something I wanted to do and it seemed to me, in "The Habitation", I failed. It felt as if it were to much. It felt as if the life were too perfect or something. It felt as if, no matter how hard I tried, I would never be able to communicate in this format, what it was like to live here. It is also hard to update my pages from the cabin. And so I slowly began to withdraw.
And so I'm back now - I've made peace with this journal. I've made peace with a great many things this year. a great many other things, I'm still fighting. But I've come to believe, I don't have to keep this journal in order to believe in living here. At one time, it felt as if living here and keeping the journal were synonymous - that I couldn't do either one without the other. Now, at least I believe, I am at peace with it. I do love being here. I love the isolation, but I do go in to town for visits with friends. I love the remoteness; the solitude. I love being independent - keeping the place warm with wood. I love the wilderness, and for what it's worth, I love keeping this journal.
Tuesday, July 23, 2013
Sunday, June 30, 2013
Just Another Day
Sitting here, as usual, well before daylight. I don’t know if it is from lack of sleep or something else, but I do not feel as strong as I have at other times. Practices long ago forsaken, lessons long ago learned, each time I feel good, each time I feel energetic or I feel that things are good, there’s nothing to worry about, I remind myself then, low times are again out there. Though I feel good now, I will not feel this way for ever. In fact, I probably won’t feel this way for very long. And this is not a bad outlook, or a poor attitude. Good times don’t last, Thank God, because then again neither do bad times, and if anything is constant it is that everything changes.
(I’m trying to purge and eliminate redundancy from my writings)
Are there times, as it seems, that I “see” further and better the true nature of things? I think probably. Even our ability to form accurate constructs of reality change from day to day, and if some days I can’t actually see into things more deeply, The Universe sure fooled me. In math we see this in linear algebra; that if we have at least one piece of information about every unknown, then we can ultimately solve the problem (morebetter, that the problem has a solution). In daily life, there are millions of variables and libraries of information to go along with that. I am not the county’s best mathematician nor the best problem solver, but no analysis can easily solve numerical problems involving greater than three equations and three unknowns; MY POINT BEING, it is not surprising that life is a mystery, and often we are doing very well with even our very best guesses (saving ourselves from the horrors of actual solutions which may not even exist).
As time has passes, on those many and increasing days I am able to say “oh death, where is thy sting….”, I know it more and more better, life comes with its own “help” file, we go along “clicking” the question mark tab several times a day without even knowing it. Though a person cannot lose anything more than his or her life, and even there, the anxiety softens with time, ableing us to carry on in the face of great uncertainty. Cancer comes, we deal with it, accept it, and ultimately find ourselves more concerned about how well our cellular telephone is functioning than our lives themselves, and Thank God for that.
Which isn’t to say, having long since dealt with it all, it doesn’t all come crashing back down to Earth again, making enormous noise at times (everything changes) scaring the hell out of us all over again. Even still, we are not even surprised when things are back to normal by that afternoon, and we are back to our merry selves. It’s like, I don’t know; it’s like feeling greatful for that horrible headache. It was almost worth having the headache to experience it going away.
This particular crash (remember, I’m not feeling well again) I think came when I heard somebody mention how easy it was to learn the python computer programing language. I had a class in programing in college, and went on to use it at my job as a geologist many times. I enjoyed writing code and I was sad when it became less and less necessary for the general public to be able to compile little programs for themselves; little strings of computer logic to help us solve our own daily problems; to answer our own complex questions. Though I didn’t know it at the time, busy as I was, being a professional geologist/geophysicist, generating computer program code is soothing in the same way sewing is soothing. I became sad, because my mind’s voice said, well then, I must obtain and learn this “python”. The happier I became about learning python, the sadder I became knowing that I necessarily should limit myself on what I want to accomplish with my newly trimmed life expectancy. Good friends will tell me that I shouldn’t limit myself at all but it is me who hast to answer the question more expediently than most, do I want to finish a lot of things, or do I want to finish a few things but well (do I use a question mark here? I truly do not know).
I “Mona Lisa” smile at myself when I remember Jonathan W. Thompson, versions 30.0 through 39.9. Having good days then meant that I had actually arrived at a new, happier state of being, the elusive wellness I felt was hard won war bounty which would endure and not fade. I have long since abandoned such stable and unchanging views of the world, trading them in for the reality that everything changes and I like it better this a way. I will gladly watch good moods pale for the knowledge that even my deepest “hell” is not permanent either, that I’d nearly endure that headache in order to know what it feels like when it goes away.
Tuesday, June 25, 2013
Involuntary Motion (2005)
Wednesday, May 29, 2013
May
I’VE BEEN walking around listening to the sounds of and smelling the smells of May. I am reminded that it is by far my favorite month. It always has been, especially the last two weeks. But deep within the bird song, the sounds of the early summer, there is something I haven’t been able explain. Even though everything is exactly as I would expect it to be – In the context of all of the Mays that have come before, and become my favorite few days of the year, there has been something very slightly odd.
I realized what it was yesterday, while out watering my garden. I didn’t get to experience May last year. I was busy getting ready for my surgeries in Pittsburgh. I was gathering medical records, actually traveling to Pittsburgh to consult doctor Bartlett, and I just simply did not lift my gaze from my work to notice. Two things I would say about this: I didn’t realize I was doing it until May came around again this year, and last May was the only May I’ve failed to notice.
Oh my gosh friends, it is with a welling up of tears I remember all of the finest times in my life; Always in May. Grand backpacking trips, climbing high mountains, canoeing beautiful rivers, exploring deep caves, competing for regional championships on bicycles, looking at wild flowers, sitting still in rainy, darkening woods listening to whip-0r-wills. And for many years May was the time I was preparing for my Son, my Jonny Boy to come for the summer. I don’t have a single ill memory of May.
Is it surprising that I didn’t notice as May last year passed without my notice? I think not. Oddly, I was diagnosed with the first reoccurrence of the cancer early last May, yet my heart does not make an association. Those first few days afterwards, I was certain I was doomed. I was certain I would not live much longer, but when I met with Pittsburgh, everything seemed like it would be fine. The treatment itself nearly killed me, and I wasn’t back on my feet again until about September. But as I regained my strength, I also began to set aside the belief I had that my life would be cut short. I began to think that the doctors had it wrong, and I would survive. Very few, yet some do survive my illness. Why then couldn’t it be me? It could.
So it is, I find myself this May, still fighting yet a second reoccurrence; yet my survival beliefs so strong, I never even questioned whether the treatments would be successful. During this chemo session (starting at the beginning of March) I have not had to endure the sickness and pain of chemo with the addition of an impending since of doom – my belief in healing so strong, so rooted in my faith in Christ and Our Father in Heaven, I have been left in peace to suffer the sickness without the question of survivability. I think I decided that it simply didn’t matter if I survived or not, I am free to believe anything I want, or at least anything my brain can convince my heart is true, true or not.
I go into my final chemo treatment in less than a week. I face this final treatment, still very sick and in a great deal of pain from the previous treatment. All of this time, I have fought hard to get on my feet, stay on my feet, get up, go out, keep doing things, don’t give in, don’t give up… thinking, the only way I am actually sick is if I believe that I am sick. Perhaps this, so I could see May this year in all of its glory.
This morning, today, and yesterday too, I feel less resolve. Each morning, hours before the sunrise, the birds begin to sing – seemingly eager to start a new day. And so I stir, also eager to experience whatever the day has in store for me. Yet as the treatments pile up, my body becomes weaker (from fighting the cancer, probably not the cancer itself), getting to my feet in the delightfully dark predawn, I am beset with great pain. It seems every bone in my body rebels when I get up, and place my living load upon my skeleton. The pain in my bones has always subsided quickly, and by the time coffee is made, I can move much better. Not so lately. I don’t suppose I ever thought I would get this sick; this incapacitated. Of course, my surgeries last summer, put me down much more than I am now. But that was expected. That was from having been cut open from my breast bone to my pelvic bone, and much of my insides cut away. Nothing like that has occurred to make me this weak. Chemo does not come with a knife, making the sickness more stealthy I suppose.
This May, I find I am alive and sick. I also alive and well. Each day, I rise to find my limits, over and over. Am I a fool? To leave the house every day seeking joy and wellbeing, almost without fail to return sick and defeated? Not a fool. I always try. I have kept trying.
Having missed last May, and sensing something different still in this May, I also find, that May before last, I had no idea I was sick. I had no idea there was cancer in my body. I wasn’t feeling sick, so I passed through that May as I had the forty seven mays prior – with complete normalcy – extraordinary beauty, loveliest of times, the Beautiful Earth adorning – and just that recently, I had no reason to believe I had anything other than a normal chance at longevity.
I still am confident I will survive far longer than the doctors believe I will. I have learned, I cannot take the events of any given day to predict my future. I am so sick some days. I go out sometimes, thinking I will fare the movement well, then as suddenly as anything I’ve ever known, I feel the strength drain out of my body in a sensation like it is draining out through my feet; pouring out of my arms, and chest and legs and head, like water poured out on the ground. I make my way back home, sometimes dejected, sometimes not. I settle into my home, my bed and hope and pray tomorrow will be better.
Alarmingly, today, I am not sure how much longer I can resist this illness. Six hundred and forty three days a good fight makes. Only normal after that much time, I’d look for new footing.
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