Monday, October 15, 2012
I am home now, from Pittsburgh - to have my colostomy bag removed. (It was all more difficult than I had suspected it would be, but that is another time and another story).
Every step of the journey from here to Pittsburgh and back was sprinkled with a pinch of "last summer", or "last time". I had already started wondering if I had some kind of posttraumatic stress disorder regarding the events of my last visit to Pittsburgh, and now I am certain of it. The smells, sights, sounds, just everything from beginning to end of the trip reminded me of last summer. Remind isn't even the best way to describe it - every sensory thing took me to mental or emotional states that were more dreamlike than just simple memories of a stressful time. If I napped or slept, I'd slip away into unconsciousness with "last summer" uncontrollably running sequences over my minds eye. But they were clearly (to me) not memories of actual events, even though they were exactly that. They were more like memories of a dream I'd just remembered a portion of - stirred, perhaps, by lying down for the first time since I'd had the dream.
Laying still, waiting for sleep to consume me, I would explore the memory - the dream, actual event in my mind to see if could conjure up more of it, and I usually could. It was emotionally painful, but not excessively - my curiosity about the oddness of the memories outweighed the emotional distress it caused and as I cascade into sleep, I also cascade into the "memories".
Perhaps this next is a false memory, or some other deep physiological phenomena, but I am sufficiently convinced that I had visions of "Pittsburgh" when I was about six years old; I had dreams or perhaps actual visions of a large city with a hospital upon a hill. In the memory, I was with grandparents in a single storied building with large windows, across a river. We could see the hospital on the hill though the windows a mile or so away. I have had this memory all my life, and I never knew if it was real or dreamed. I've never known where it came from. I was very young; and to have carried it my entire life is odd. And the old memory running concurrently and utterly interwoven with the modern ones, were/are inseparable from my actual memories of "last summer"; I find this so very strange. It all wells up from so deep a place within me as to be utterly indescribable.
When I returned from Pittsburgh last July, I had many thoughts and ideas regarding my life, human life and life in general that I wanted to write about. At the time, it felt like an epiphany or an equally uncommon realization that was important and greatly powerful for me at the time. However, within a few days, I came to believe these particular personal revelations might have been more drug induced rather than new philosophical pathways to follow, and they faded quickly into the chaos of my recovery and were no longer attainable in my thoughts.
Perhaps this last experience is different because it is the second such "meditation", or perhaps it is because I was on far less powerful drugs, but I remember my thoughts and ideas sufficiently well to recount them and write them down. They may be disturbing to some of you, so please proceed with caution. (I find myself at a place in life where it is necessary and good for me to build, re-enforce or even modify my philosophy regarding life. However, this may not be something you want or need to read). What follows is only the beginning.
Having woken after the relatively minor surgery last week, I was taken to my hospital room. I instantly realized, even in my anesthesia induced stupor that, unlike last summer, I had a roommate. More than a day of attempts to contact my roommate were unsuccessful as my occasional and strategically placed "hello's" went unanswered. The roommate, who we might as well call "Paul", was an individual perhaps ten or so years older than me, and he rarely left his bed. With only a hospital curtain between us, it was impossible not to hear his interactions with his nurses and doctors. I didn't know at first, what Paul's illness was, but it was apparent, what ever it was, it was very serious. The dosages of the multiple pain medications Paul was being administered would literally kill me and anybody else I knew if given to us. While some of the medications were the same as mine, Paul's dosages were ten times and sometimes more than that of what I was taking. I rarely heard Paul's voice, but when I did, it was weak and he spoke using unfinished or incomplete sentences. Paul's interactions with his nurses and doctors were short, concise, and twisted with whatever pain racked his body. When medical staff could not understand his answer to a question, his reply was infallibly colored with his frustration that he had not been heard the first time, and was now being intolerably asked to repeat himself. I knew, what ever it was wrong with Paul, it was more advanced and more serious than my condition.
My bed was at the window; Paul's on the doorway side of the room. If the bathroom I needed or any other reason to leave my own bed, I had to pass by the foot of his. Each time, I looked at Paul to see if I could connect with his eyes, but he was most often lying in a right-handed fatal position. More than 24 hours into my hospital stay, Peggy and I were leaving my room to walk the halls, as I was recovering nicely. Exiting round the dividing curtain and passing by the foot of Paul's bed, I was shocked to see him seated upright, in a sort of a cross-legged position in the center of his bed. His emaciated hands were clasped and placed in his lap, or between his crossed legs. His head deeply bowed, and eyes closed, he appeared to be either asleep (which was unlikely since he was not leaning on any part of his bed) or praying or thinking.
My earlier attempts to introduce myself, which had been either unheard or unwanted by Paul led me to respect his silence. But as Peggy and I passed the foot of his bed, I felt compelled to move close enough to touch his clasped hands. I felt so much compassion for Paul. When I touched his hands, he raised his head from its deep, painful looking bow, and our eyes connected. My touch of his hands was meant as a communication to him that I wished for him an easing of his great and vast pain, and healing - I meant for him to know within only the instant and short duration of our physical contact that I intended only God's Blessings upon him. Surprisingly, as our eyes connected, he nodded to me in understanding and no words were necessary at all, and the moment passed without them. Peggy and I went on with our walk.
Later, Paul was willing to talk, if only in the short, incomplete sentences he was capable of within the limits of his pain. Paul told me that he was suffering from late stage colon cancer.
I am sure that Paul had heard, and continued hearing the common moments of levity and joy coming from my side of the dividing curtain. Peggy and I had both brought painting supplies, knitting and sewing projects, and we were having some fun with our smart phones. I doubt it bothered Paul. When I looked into his eyes, I saw a good soul looking back at me. In fact, to believe that Paul had a thought at all, regarding me and my condition seems self-centered considering the level of pain he was in. And I think that both Peggy and I were both careful not to flaunt whatever fun we might be having with our crafts and smart phone facebooking.
Sunday arrived and so did "Tanequa", Paul's loud and lovely wife. And with Tanequa, what had once been two separate hospital rooms melted into one room filled with those who needed care giving and those who were giving it. The initial contact came in a light-hearted yet loud question from Tanequa. She wanted to know "where are Steelers stuff" was! The Steelers were having a game later that day, and Tanequa had come to the hospital to watch the game with Paul. An introductory conversation ensued which included all of the "how-too's" and "what not's" of each of our situations. Even Paul managed a few words from behind the curtain. Tanequa forgave Peggy and I for not having the good sense to ware yellow and back that day (for the Steelers), yet gladly accepted our offer to become Steelers fans for the day.
Tanequa's destruction of the dividers between us allowed me to converse with Paul a little more over the next few days, when nobody else was around. Not that I was prying, but it was impossible to keep from overhearing the conversations between Paul and his medical staff. As I regained my strength relatively quickly, Paul's condition and situation worsened. It is strange, but for this, I felt oddly guilty. By way of the overheard conversations and what Tanequa and Paul himself were willing to share with us, it was apparent that Paul was most probably nearing the end of his fight with colon cancer. Over Monday and Tuesday, a virtual parade of various specialists came to consult Paul, and whether or not I wanted to, I heard nearly every word. They had some ideas for procedures that may relieve his pain, and allow him to regain enough strength to re-start his chemotherapy. But in his condition, it was all dangerous to Paul. Eventually, "end of life" and hospice representatives came to visit him as well. I had never wondered about how things would proceed for me if or when I neared death from this horrible disease, but whether I wanted it or not, I now have a direct, real life visual.
Lots of people comment about how strong they think I am or have been for the past year of this fight I'm in. But I am certain now, when we become sick and as we near death, as was probably the case for Paul, The Peace of God comes to us, and fills us with acceptance and faith. I've seen it in myself, and I saw it in Paul. As they discussed the dangers of his upcoming procedures and the probable fact that he had only a brief time left on this Earth, Paul never winced or wavered or seemed to feel sorry for himself. Paul navigated those hours with dignity and grace that can only come from God, and he advanced my own strength, and confidence that, as frightening as death may seem to every human being on Earth - those living now, or who have ever lived, there truly does come upon us a calming peace.
Even in the end - even in the paying of our ultimate debt, God truly does not put more on us than we can handle. While it may not be what we want, at least, at the very minimum, we are given the strength to handle even the unthinkable. And in the end, it is my firm believe, this is how we can live a meaningful and joyful life in the face of our own eventual and ultimate demise.
As for me, like I said, I am home. And while I am in some pain and great discomfort, for the moment, the path before me is lightening and filling with hope. I will begin training soon on the bicycle, and I hope to rejoin my fishing and ginsenging endeavors and even return to work soon. I will do this, not knowing whether the cancer will stay away or not.
I do not know where Paul is; I do not know how he is doing. It is even possible that he has gone Home to Be with God. All I know is, God is giving to me what I need as I need it. Along with the surgery I had last week, I also needed to know Paul.
Still, none of this is to say, I don't have or have had many and overwhelming moments of weakness, sorrow and fear. But there is an unexplainable, unfathomable Peace available to all of us even in the face of death.
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